by Stephanie Holmes | May 25, 2022 | Uncategorized
It is 2:47 am; it has been raining off and on for days now. Sometimes with strong winds or lightning, but always with buckets of water. All causing disruptions in my day-to-day world. When is it going to stop? What can I do to be safe? What damage will this storm...
by Suzanne Tierney | Apr 26, 2022 | Uncategorized
Lupus Awareness 50 Years ago Let’s talk about the purpose of Lupus awareness. I have been leading the charge for lupus change here in Ohio for over 35 years. I remember when I was first diagnosed with systemic lupus erythematosus at the age of 27. Wow-what a...
by Lupus Foundation America | Mar 15, 2022 | Blog, Uncategorized
The American College of Rheumatology (ACR) and the Lupus Foundation of America (LFA) are teaming up to help increase lupus awareness and reduce the time to diagnosis. Lupus is a disease that is known for being difficult to diagnose because the symptoms are different...
by Suzanne Tierney | Sep 9, 2021 | Uncategorized
Oh no! My doc is going to retire! This seems to be a popular statement this year. What the heck is going on? For me, it took decades to find my DOC CREW. I have the magic potion that finally gave me a better quality of life. Together, we made the crazy and complicated...
by Kay Adams | Jun 30, 2021 | Uncategorized
Last weekend I was at the Toledo Zoo, we hosted a small constituent appreciation event where we had a booth set up with our purple signage and Know Lupus sign. A young girl came up to the table and asked, “why are you here?” slightly accusatorily as kids do. I said,...
by Stephanie Holmes | Jun 30, 2021 | Uncategorized
My mom was diagnosed with lupus in her 20’s, years before she had me. She then started working at the Lupus Foundation of America, Greater Ohio Chapter (LFA, GOC) in 2008. I grew up around lupus and the LFA, GOC. I have gone from volunteering at walks and stuffing...
