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PATIENT STORIES

Natalie’s Voice

Sep 18, 2020 | Patient Stories

Calendar

May 15, 2021
  • Southeast Cleveland Support Group

    Clock IconDate & Time of Event:
    May 15, 2021  11:00 am - 12:30 pm
    Marker IconEvent Location:
    About the event:

    CLICK HERE FOR FULL EVENT DETAILS

  • W.T.Y.L. WebTalk for Young Lupians

    Clock IconDate & Time of Event:
    May 15, 2021  2:00 pm - 3:00 pm
    Marker IconEvent Location:
    About the event:

    This event is available for adolescents (ages 8-18) who are affected by lupus and their guardians/loved ones. Leslie Tierney, the LFA, GOC's VP of Operations, Patient Navigator, and Registered Nurse, will be on our Facebook page.

    CLICK HERE FOR FULL EVENT DETAILS

May 17, 2021
May 18, 2021

My name is Natalie, and I have had lupus for about 20 years. Through no genetic correlations, over the years I have developed type 1 insulin resistant diabetes, Hashimoto’s thyroid disease, gastroparesis, nerve damage, fibromyalgia, gallbladder issues, and heart conditions requiring a pacemaker, along with other miscellaneous malfunctions as I like to call them…I am not the average 30-year-old; most do not understand my daily struggles or fears of not being able to wake up one day. It is a hard and lonely path for those with “invisible” illnesses. A cure feels unlikely after all these years and I begin to question how functional I will be in the next 10. We shouldn’t have to feel this way though. We need answers and we need hope to sustain us in our journeys. We need good medical care and insurance that doesn’t require a fight at every step. Not every day will be easy, but every day shouldn’t have to be this hard. On the outside all seems well, but on the inside, I fight every day to appear healthy and get through the day so that I can get through the next.

Calendar

May 15, 2021
  • Southeast Cleveland Support Group

    Clock IconDate & Time of Event:
    May 15, 2021  11:00 am - 12:30 pm
    Marker IconEvent Location:
    About the event:

    CLICK HERE FOR FULL EVENT DETAILS

  • W.T.Y.L. WebTalk for Young Lupians

    Clock IconDate & Time of Event:
    May 15, 2021  2:00 pm - 3:00 pm
    Marker IconEvent Location:
    About the event:

    This event is available for adolescents (ages 8-18) who are affected by lupus and their guardians/loved ones. Leslie Tierney, the LFA, GOC's VP of Operations, Patient Navigator, and Registered Nurse, will be on our Facebook page.

    CLICK HERE FOR FULL EVENT DETAILS

May 17, 2021
May 18, 2021

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