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PATIENT STORIES

Tim’s Story

Oct 17, 2020 | Patient Stories

Calendar

May 15, 2021
  • Southeast Cleveland Support Group

    Clock IconDate & Time of Event:
    May 15, 2021  11:00 am - 12:30 pm
    Marker IconEvent Location:
    About the event:

    CLICK HERE FOR FULL EVENT DETAILS

  • W.T.Y.L. WebTalk for Young Lupians

    Clock IconDate & Time of Event:
    May 15, 2021  2:00 pm - 3:00 pm
    Marker IconEvent Location:
    About the event:

    This event is available for adolescents (ages 8-18) who are affected by lupus and their guardians/loved ones. Leslie Tierney, the LFA, GOC's VP of Operations, Patient Navigator, and Registered Nurse, will be on our Facebook page.

    CLICK HERE FOR FULL EVENT DETAILS

May 17, 2021

My lupus story started well before I was officially diagnosed in May of 2013 at 32 years old. I was suffering from joint pain and couldn’t understand why, at such a young age, I was having this pain. One day, I woke up to go to work and couldn’t get out of bed. I thought it was the flu because I was in horrible pain and had severe fatigue. However, after several tests and hospital visits, I was informed by my rheumatologist that I had lupus. I was so misinformed in believing that only women could get lupus. I eventually came to accept that I had the disease. I’ve had depression, blood clots, heart and neurological issues. Flares usually include hair loss, so now I keep my head bald. I continue to work full-time, but there are periods where I am forced to take time off due to a severe flare. I go to support groups to deal with my illness and get educated. I also have tremendous support from my wife and daughter who are extremely understanding. I have made it my personal mission to inform and educate people about lupus because so many people don’t know what it is.

Calendar

May 15, 2021
  • Southeast Cleveland Support Group

    Clock IconDate & Time of Event:
    May 15, 2021  11:00 am - 12:30 pm
    Marker IconEvent Location:
    About the event:

    CLICK HERE FOR FULL EVENT DETAILS

  • W.T.Y.L. WebTalk for Young Lupians

    Clock IconDate & Time of Event:
    May 15, 2021  2:00 pm - 3:00 pm
    Marker IconEvent Location:
    About the event:

    This event is available for adolescents (ages 8-18) who are affected by lupus and their guardians/loved ones. Leslie Tierney, the LFA, GOC's VP of Operations, Patient Navigator, and Registered Nurse, will be on our Facebook page.

    CLICK HERE FOR FULL EVENT DETAILS

May 17, 2021

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